Planning when you have a chronically ill child

Awhile back my sister asked us if next yr we wanted to go on a trip with them, I immediately said yes, not thinking ahead. then it came up a few questions about the trip and it made me think that I don't have the answers , i dunno how my child's illness will be when the time actually comes to go on a trip a yr in . What happens if we cannot go ? what happens if we plan it all out and in the end we cannot due to health issues go and everyone is relying on us to pay our part of the trip and it is now onthem to make up teh money for us not going and contributing to this trip? How do other families of chronically ill children/people plan a trip with friends and family and feel ok about it if the time came and you coudl not go ? I tried to explain this and in the end was not understood by my family. I am confused and not sure anymore if in our life we can honestly say we can do something , to be open and honest about it I woudl feel horrible if we said we coudl go and then couldn't and left our family having to make up for our part of the trip. How do I explain how I feel to the ones who invited us and am I wrong in deciding that we cannot plan things like this in the event we cannot go ?

my life as a single mom: Being a single mom

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my life as a single mom: Letting go

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my life as a single mom: Dealing with a child who refuses to go with the pa...

my life as a single mom: Dealing with a child who refuses to go with the pa...: "From the time my daughter was little she never developed a strong bond with her father. I went back to work , working evenings after a year ..."

my life as a single mom: First day of giving my daughter her needle.....

my life as a single mom: First day of giving my daughter her needle.....: "Today we were going to go to the hospital for the last time to give Sophie her Methotrexate Injection, with the help of the nurse. But becau..."

my life as a single mom: working our way back to Saturdays for Sophies meth...

my life as a single mom: working our way back to Saturdays for Sophies meth...: "working our way back to Saturdays for Sophies methotrexate, needle day is tomorrow, I have given her her needle 3 times now but it is still ..."

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my life as a single mom: I am not perfect but am I really that bad?

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my life as a single mom: tired of being the bad guy and seeing Sophie suffe...

my life as a single mom: tired of being the bad guy and seeing Sophie suffe...: "Last night was one of the more harder times we have had with Sophie and her injection, she hates them , I hate giving them to her and in teh..."

tired of being the bad guy and seeing Sophie suffer.

Last night was one of the more harder times we have had with Sophie and her injection, she hates them , I hate giving them to her and in teh end after the crying and screaming and sayin " I want to live on teh  streets and find a new family" all is calm again but my heart is not. It has been 6 months since we started on the road of methorexate injcetions we have had out ups and downs, good days and not so good days. We have had some ok needle days and then there came a pint where it took me plus my parents to hold her down and make her take the needle screaming and crying. As a mom , you want to not hurt your children, I do not spank her or hit her , sometimes I raise my voice but I do not hurt her physically, I know it is my job as a mom to protect her and guide her through this amazing but crazy life. I feel like an udder failure at protecting her from pain. One I cannot control her arthritis and even though praying for god to give me her pain I know this is gods work and who am I to question it, but i do , why does she have to suffer, why does she have to endure nedles and daily medicine and blood work and appointments and feeling different from her frineds. I know in the end this experience wil make her a stronger person and she is already strong and brave , but deals with more then any child should have to. She wants to learn to swallow a pill and g back to oral mtx and I will call the dr and take to her about it. I really hope but not going to get her hopes up that she wil aloow her to go back the pill. I pray everyday for her and all children suffering , I try to be brave and strong for my daughter and I guess that is all I can do .....