Neither Sophie or I are morning people , and we usually have a hard time getting up , we fight about getting ready for school and its a struggle to get her up and ready to get out the door. Today however, she was happy to get up when her alarm went off, got all her stuff done and ready to head to school with no fuss, she even wanted to be to school early to play outside for a bit before school.
Other then being a bit fatigued lately, she has really had very little pain , a few minor complaints here and there but she really seems to be doing ok lately with her Arthritis. Next week we go back to see our rheumy , and Iam hoping for good news, in the last 3 yrs of us dealing with jia , almost all of our trips to the childrens hospital have resulted in med changes, injections and just not great news. But Iam hopeful this time even after last months scare of her liver function blood work being elevated and being taken off her med for a few weeks is not getting in the way of hopefulness of good news. We go for blood work this week and will see how her liver is doing and hopefully it will stay where it should be, we are very limited in the drugs they can give her due to her immune defiency. So this one even with all the scary side effects and chance it can affect her liver again seems to be her miracle drug and we will keep her on it as long as it helps her and gives her back her childhood.
I hope I am not being too optomistic that I regret it later on , I am not always a positive person but seeing Sophie with little pain and being able to do the things she loves without suffering for it later has made me the happiest person in the world. She has been through so much , we have struggled with needles, and with getting her to take meds and now for things to be looking up I am so greatful. I am so blessed with a wonderful church family who has kept Sophie in their prayers and a wonderful on line supportive group who have become part of my daily life and I would be lost without them . My immediae family have been so supportive as well, Next week is our 16th trip to a hospital that is 5 hours drive , and my mom has come with me every trip , and my sis has helped me out with looking after my fur babies, I am so thankful for them.
I know I don't always show how much I am greatful for my life and all those in it, but today I am saying thanks , and I do feel so blessed for all I have and everything that is going right in my life right now. It maybe cloudy and grey outside today but knowing my daughter is doing well and my family are safe and love me , my heart is full of sunshine and gratitude for all I have .
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